GUIDANCE THROUGH THE DEEP WATERS OF TODAY’S HEALTHCARE

Kendra Neilsen Myles

EDS Wellness, Inc.

 

Member profile details

Membership level
Not For Profit Organizations
First name
Kendra
Last name
Neilsen Myles
Organization
EDS Wellness, Inc.
Logo
Phone
240-687-7791
Street Address
7717 Maryknoll Ct.
City
Bethesda
State or Province
MD
Postal Code
20817
Country
United States
 

Professional information

Job Title
Principal & Owner
Service Area
EDS Wellness is a non-profit organization promoting health education, integrative healthcare, and wellness strategies for living well with connective tissue disorders such as Ehlers-Danlos syndrome (EDS), through print and digital media resources and materials, including seminars, webinars, conferences, wellness coaching, and patient advocacy.

EDS Wellness provides education on various movement, nutrition, and mind-body techniques by collaborating with healthcare practitioners and like-minded organizations, to improve the quality of life and overall well-being of individuals living with EDS, other disorders of the connective tissue, and related chronic, often invisible illnesses.

EDS Wellness collaborates with other organizations and healthcare practitioners on various projects associated with all connective tissue disorders and related conditions, to provide information & resources for those living with EDS and the medical practitioners who care for them. EDS Wellness focuses on helping patients live well, while living with a chronic illness(es).

Questions - info@edswellness.org

Website - www.edswellness.org
Area of Expertise
- Ehlers-Danlos syndrome & all hypermobility syndromes
- Heritable Connective Tissue Disorders
- Mast Cell Activation Disease
- Multi-sytemic and complex conditions
- Public Health/Health Education
- Program developement and Implementation
- Training and education of volutneers, support group leaders and patient advocates.
- Natural Movement/Physical Therapy
- Nutrition for chronic Illness
- Mindfulness Therapies for chronic pain and chronic Illness
- Yoga
- print and digital media
- social media for business and health care advocacy
- business start-up
- publishing
- special needs
- conferences, seminars, webinars, podcasts
Work Environment
Advocate in a non-profit
Years in the Field
19 years
Additional Information
Speaker • Author • Health Educator • Medical Writer & Blogger • Ehlers-Danlos Advocate • Movement • Mindfulness • Nutrition

Kendra Neilsen Myles holds a BS in Public Health/Health Education from the University of Maryland. She worked for Johnson & Johnson as a territory manager for their Ortho-McNeil Women's Healthcare division. Kendra remained in her position for 6 years, earning numerous top sales awards during her tenure, until she was diagnosed with Ehlers-Danlos syndrome (EDS) after the birth of her first child. Using the time away from her career while striving to learn about her illness, she focused on regaining her strength and determination through ways that she knew were best to care for herself. Kendra's desire to help the EDS community, coupled with her education in public health, experience working in medical device and pharmaceutical sales led her to speak about Ehlers-Danlos syndrome and its related comorbidities from a patient's perspective to several organizations, coordinated fundraisers to promote EDS awareness and support EDS non-profit organizations, and launched Strength/Flexibility/Health/EDS.com - an digital wellness magazine for those striving for “strength, flexibility, and health,” while living with Ehlers-Danlos syndrome (EDS) and related chronic medical conditions.

For the last 4 1/2 years, Kendra has served as the volunteer coordinator for the Ehlers-Danlos National Foundation HelpLine (recently renamed The Ehlers-Danlos Society). It was through Kendra's life and professional experiences, that she first founded Mediterina Medical Solutions, LLC, and then EDS Wellness, Inc. — a registered non-profit organization focused on organizing integrative health & wellness events and conferences, and on disseminating health education resources and materials for those living with heritable disorders and diseases of the connective tissue, and related chronic illnesses. A few of EDS Wellness' main projects are - Wellapalooza Integrative Health and Wellness Conferences (& retreats!), Moving Naturally with Hypermobility Seminars, "Just 5 Minutes,” and the EDS Ride for a Cause.

Kendra's love for reading and writing stems from a childhood surrounded by books, spending much of her life in her mother's bookstores. The granddaughter of a former House and Garden magazine publisher, she combined her passion for serving the EDS community, with her strength in medical writing and interest in publishing, to co-author the first Ehlers-Danlos syndrome anthology, Our Stories of Strength - Living with Ehlers-Danlos Syndrome. Subsequently, Kendra founded Sisters Media, LLC - a media company focused on photography and design projects, as well as the publishing of digital and print materials in fields of health, medical, and wellness, including non-fiction books, anthologies, and magazines.
 

Background and Training

What type of Medical Training do you have? (If any)
Degree in Public Health/Health Education from University of Maryland, experience in pharmaceutical sales, started my own medical sales business, and founded EDS Wellness, Inc.
What kind of Advocacy experience do you have? (If any)
Advocacy experience both independantly and through volunteer work with the Ehlers-Danlos National Foundation. Experience comprises the gathering of information, serving as a liason between patients or caregivers, and medical professionals, medical institutions, or health insurance companies. Additional experience includes guest speaking to medical professionals and other audiences on Ehlers-Danlos syndrome, including discussions on being a patient with EDS in the mainstream medical field.
Do you have a degree in Healthcare Advocacy?
Yes
From where?
University of Maryland School of Health and Human Performance
Have you participated in Education and/or Research
Yes, and currently working with The Mindfulness Center in Bethesda, MD on various research opportunities - a joint collaboration between EDS Wellness, Inc., specialists in EDS, and The Mindfulness Center.
Other (Please explain)
Health Educator
 

Member photo albums (1 Album)

2625 Alcatraz Avenue, Suite 228 | Berkeley, CA 94705 | admin@nahac.com
Copyright NAHAC 2009 - 2017 | All Rights Reserved

Powered by Wild Apricot Membership Software