Speaker • Author • Health Educator • Medical Writer & Blogger • Ehlers-Danlos Advocate • Movement • Mindfulness • Nutrition
Kendra Neilsen Myles holds a BS in Public Health/Health Education from the University of Maryland. She worked for Johnson & Johnson as a territory manager for their Ortho-McNeil Women's Healthcare division. Kendra remained in her position for 6 years, earning numerous top sales awards during her tenure, until she was diagnosed with Ehlers-Danlos syndrome (EDS) after the birth of her first child. Using the time away from her career while striving to learn about her illness, she focused on regaining her strength and determination through ways that she knew were best to care for herself. Kendra's desire to help the EDS community, coupled with her education in public health, experience working in medical device and pharmaceutical sales led her to speak about Ehlers-Danlos syndrome and its related comorbidities from a patient's perspective to several organizations, coordinated fundraisers to promote EDS awareness and support EDS non-profit organizations, and launched Strength/Flexibility/Health/EDS.com - an digital wellness magazine for those striving for “strength, flexibility, and health,” while living with Ehlers-Danlos syndrome (EDS) and related chronic medical conditions.
For the last 4 1/2 years, Kendra has served as the volunteer coordinator for the Ehlers-Danlos National Foundation HelpLine (recently renamed The Ehlers-Danlos Society). It was through Kendra's life and professional experiences, that she first founded Mediterina Medical Solutions, LLC, and then EDS Wellness, Inc. — a registered non-profit organization focused on organizing integrative health & wellness events and conferences, and on disseminating health education resources and materials for those living with heritable disorders and diseases of the connective tissue, and related chronic illnesses. A few of EDS Wellness' main projects are - Wellapalooza Integrative Health and Wellness Conferences (& retreats!), Moving Naturally with Hypermobility Seminars, "Just 5 Minutes,” and the EDS Ride for a Cause.
Kendra's love for reading and writing stems from a childhood surrounded by books, spending much of her life in her mother's bookstores. The granddaughter of a former House and Garden magazine publisher, she combined her passion for serving the EDS community, with her strength in medical writing and interest in publishing, to co-author the first Ehlers-Danlos syndrome anthology, Our Stories of Strength - Living with Ehlers-Danlos Syndrome. Subsequently, Kendra founded Sisters Media, LLC - a media company focused on photography and design projects, as well as the publishing of digital and print materials in fields of health, medical, and wellness, including non-fiction books, anthologies, and magazines.